{"product_id":"the-warrior-mama-tidbits-and-tales-from-the-trails-paperback","title":"The Warrior Mama: Tidbits and Tales from the Trails - Paperback","description":"\u003cdiv\u003e\u003cp style=\"text-align: right;\"\u003e\u003ca href=\"https:\/\/reportcopyrightinfringement.com\/\" target=\"_blank\" rel=\"nofollow\"\u003e\u003cb\u003eReport copyright infringement\u003c\/b\u003e\u003c\/a\u003e\u003c\/p\u003e\u003c\/div\u003e\u003cp\u003eby \u003cb\u003eKaren Fisher Ball\u003c\/b\u003e (Author)\u003c\/p\u003e\u003cp\u003e\u003c\/p\u003e\u003cp\u003eKaren Fisher Ball is \u003cem\u003eThe Warrior Mama\u003c\/em\u003e. She's made it her life's mission to encourage research and -discover treatments for \u003cstrong\u003eSturge-Weber syndrome\u003c\/strong\u003e (SWS), a vascular malformation neurocutaneous disorder that is characterized by a congenital facial birthmark, glaucoma, and neurological abnormalities.\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cp\u003eWhen Karen's daughter was diagnosed at birth with SWS, few resources were available for families and caregivers. No support groups, guidebooks, websites, or even brochures on the complexities of this unique condi-tion. A guide to living with SWS simply did not exist. In fact, many medical prac-titioners had no experience with diagnosing or treating children with SWS.\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cp\u003eInspired by faith and driven by determination, Karen blazed her own trail and created the \u003cstrong\u003eSturge-Weber Foundation\u003c\/strong\u003e to battle SWS. She embarked on a fundraising and research journey through the medical community and the pharmaceutical industry that has helped people worldwide.\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cp\u003eIn Part I of \u003cem\u003eThe Warrior Mama\u003c\/em\u003e, Karen traces the source of her strength through her family's history in the Old West - Butte and Helena, Montana. In Part II we hear the voices of other Warrior Mamas and their tales of battling SWS in their children. Part III introduces the Sturge-Weber Foundation and its early efforts to enlist the National Institutes of Health in search of solutions. Finally, Part IV delivers wisdom and observations from Karen's blog.\u003c\/p\u003e\u003cp\u003e\u003cstrong\u003eThere is sadness and joy in these stories, and plenty of hope\u003c\/strong\u003e - hope for anyone who feels they are facing an impossible situation with the health of a loved one.\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cp\u003ePart autobiography and part inspirational guide, \u003cem\u003eThe Warrior Mama\u003c\/em\u003e captures the essence and energy that Karen and her fellow warriors have drawn upon to build an extended family of support for everyone affected by Sturge-Weber syndrome and a Port Wine Birthmark.\u003c\/p\u003e\n            \u003cdiv\u003e\n\u003cstrong\u003eNumber of Pages:\u003c\/strong\u003e 216\u003c\/div\u003e\n            \u003cdiv\u003e\n\u003cstrong\u003eDimensions:\u003c\/strong\u003e 0.59 x 9 x 6 IN\u003c\/div\u003e\n            \u003cdiv\u003e\n\u003cstrong\u003ePublication Date:\u003c\/strong\u003e November 25, 2021\u003c\/div\u003e\n            ","brand":"BooksCloud","offers":[{"title":"Default Title","offer_id":52517733171507,"sku":"9780967048420","price":47.48,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0300\/5595\/6612\/files\/Kk6bKJqe479780967048420.webp?v=1760450265","url":"https:\/\/www.vysn.com\/products\/the-warrior-mama-tidbits-and-tales-from-the-trails-paperback","provider":"VYSN","version":"1.0","type":"link"}